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Cornelia De Lange Syndrome (CDLS) Foundation UK and Ireland

Photograph taken by John Openshaw

Cornelia De Lange Syndrome (CDLS) Foundation UK and Ireland

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The CdLS Foundation exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime.

In the UK the Foundation is run entirely by volunteers including parents and professionals.

Contact Details

Organiser

Jacquie Griffin

Telephone Number

01375 376439

Email Address

info@cdls.org.uk

Location

Local Offer

SEN Provision Type

Targeted

Details

Our service/organisation is part of the Local Offer, please contact us for further information

Age Bands

16-25 years, 11-15 years, 6-10 years, 0-5 years

Core Response Approved?

Yes

Service Information

Coverages:

National

Target Audiences:

Adults, Older people (over 65), Adult carers

Support Groups:

Physical impairment

Last updated 23rd February 2024

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