Cornelia De Lange Syndrome (CDLS) Foundation UK and Ireland

Cornelia De Lange Syndrome (CDLS) Foundation UK and Ireland

0 Reviews

The CdLS Foundation exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime.

In the UK the Foundation is run entirely by volunteers including parents and professionals.

Contact Details


Jacquie Griffin

Organiser Address

Guardian Avenue, North Stifford, Grays, Essex RM16 5US

Telephone Number

01375 376439

Email Address


Local Offer

SEN Provision Type



Our service/organisation is part of the Local Offer, please contact us for further information

Age Bands

16-25 years, 11-15 years, 6-10 years, 0-5 years

Core Response Approved?


Service Information



Target Audiences:

Adults, Older people (over 65), Adult carers

Support Groups:

Physical impairment

Last updated 24th April 2020

That feature is only available to logged in users.

Please login to your account or register for an account if you don't already have one.