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PANS/PANDAS UK Charity

Photograph taken by Maurice Clegg

PANS/PANDAS UK Charity

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PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition.

PANS and PANDAS provide the following:

  • Resources for parents including diagnostic criteria and details of local support groups. 
  • Resources for Medical professionals  
  • Resources for teachers and Schools 
  • Teacher training package 
  • Facebook group for parents/caregivers 
  • Facebook group for Young People age 12-17 with the condition. 
  • Facebook group for Adults 
  • Links to further Research 
  • Advocacy and support from the charity

Contact Details

Organiser

Paula Scott

Job Title/Position

PA to the Chair of Trustees & Community Support Executive

Mobile Number

07425856181

Times & Dates

Date(s) Info

Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.

Days of the week

Support is available 24/7

Time of Day

Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.

Local Offer

Contact Name

Paula Scott

Contact Email

paula.scott@panspandasuk.org

SEN Provision Type

specialist

Age Bands

16-25 years, 11-15 years, 6-10 years, 0-5 years

Costs & Bookings

Cost

Free at point of access, supported through the PANS/PANDAS UK Charity.

Additional Information

Free at point of access, supported through the PANS/PANDAS UK Charity.

Notes

Referral Notes

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

Eligibility Notes

Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  

Affected children can be in mainstream, alternative, specialist provision or electively home educated. 

Service Information

Coverages:

All

Target Audiences:

Adults, Parent carers, Primary and Secondary School Special Educational Needs Co-ordinators (Sencos), teachers and teaching assistants, School staff within any of Bury's Primary schools

Support Groups:

Autism, Mental health conditions, Sensory Impairment, Health & Wellbeing, Complex Needs

Eligibility Requirements?:

Last updated 5th May 2023

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