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PANS/PANDAS UK Charity
PANS/PANDAS UK Charity
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PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
PANS and PANDAS provide the following:
- Resources for parents including diagnostic criteria and details of local support groups.
- Resources for Medical professionals
- Resources for teachers and Schools
- Teacher training package
- Facebook group for parents/caregivers
- Facebook group for Young People age 12-17 with the condition.
- Facebook group for Adults
- Links to further Research
- Advocacy and support from the charity
Contact Details
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Organiser
- Paula Scott
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Job Title/Position
- PA to the Chair of Trustees & Community Support Executive
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Mobile Number
- 07425856181
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Email Address
- paula.scott@panspandasuk.org
Times & Dates
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Date(s) Info
- Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.
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Days of the week
- Support is available 24/7
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Time of Day
- Please join our Facebook group PANS PANDAS UK, where you can obtain further support as and when needed.
Local Offer
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Contact Name
- Paula Scott
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Contact Email
- paula.scott@panspandasuk.org
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SEN Provision Type
- specialist
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Age Bands
- 16-25 years, 11-15 years, 6-10 years, 0-5 years
Costs & Bookings
Cost
Additional Information
Free at point of access, supported through the PANS/PANDAS UK Charity.
Notes
Referral Notes
Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.
Eligibility Notes
Any Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.
Affected children can be in mainstream, alternative, specialist provision or electively home educated.
Service Information
Coverages:
All
Target Audiences:
Adults, Parent carers, Primary and Secondary School Special Educational Needs Co-ordinators (Sencos), teachers and teaching assistants, School staff within any of Bury's Primary schools
Support Groups:
Autism, Mental health conditions, Sensory Impairment, Health & Wellbeing, Complex Needs
Eligibility Requirements?:
Links for information
Website:
Facebook:
Instagram:
Twitter:
Links
Last updated 5th May 2023