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Retina UK
Retina UK
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Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.
We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Helpline: 0300 111 4000 – Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.
Talk and Support – For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.
To find out more about the telephone, online, and face-to-face services offered by Retina UK please visit our website: www.RetinaUK.org.uk.
Contact Details
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Organiser
- Denise Rawden
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Job Title/Position
- Information and Support Manager
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Mobile Number
- 07429 689804
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Telephone Number
- 01280 821334
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Email Address
- services@retinauk.org.uk
Location
Notes
Eligibility Notes
Need to have an inherited sight loss impairment or link to loved one.
General Notes
Local Offer
Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. Helpline: 0300 111 4000 – Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.
Service Information
Coverages:
National
Target Audiences:
All ages
Support Groups:
Visual impairment
Eligibility Requirements?:
Links for information
Last updated 6th June 2024