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Retina UK

Photograph taken by Maurice Clegg

Retina UK

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Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them.

We support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

Helpline: 0300 111 4000 – Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.

Talk and Support – For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.

To find out more about the telephone, online, and face-to-face services offered by Retina UK please visit our website: www.RetinaUK.org.uk.

Contact Details

Organiser

Denise Rawden

Job Title/Position

Information and Support Manager

Mobile Number

07429 689804

Telephone Number

01280 821334

Email Address

services@retinauk.org.uk

Location

Notes

Eligibility Notes

Need to have an inherited sight loss impairment or link to loved one.

General Notes

Local Offer

Retina UK is the national charity for families living with inherited retinal dystrophies. We fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. Helpline: 0300 111 4000 – Our helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.

Service Information

Coverages:

National

Target Audiences:

All ages

Support Groups:

Visual impairment

Eligibility Requirements?:

Links for information

Last updated 7th December 2023

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