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Nystagmus Network
Nystagmus Network
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The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus. Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition.
At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.
The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the HI-tech digital online presence of today.
The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20 June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.
Contact Details
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Organiser
- Sue Ricketts
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Job Title/Position
- Executive Information and Development Manager
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Telephone Number
- 01427 718093
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Email Address
- info@nystagmusnet.org
Costs & Bookings
Additional Information
Free service, membership is available but not necessary to access free information and support
Notes
Referral Notes
Please feel free to self refer by telephone or email - no cost involved
Eligibility Notes
Anyone affected by Nystagmus is welcome
Service Information
Coverages:
All
Target Audiences:
All ages
Support Groups:
Visual impairment
Links for information
Website:
Facebook:
YouTube:
Instagram:
Twitter:
Last updated 9th May 2023